First things first: I had an ultrasound today to check on my
AFI and cord Doppler. The cord Doppler
was fine but the AFI was down to 4.6, after being at 8.6 just three days
ago. Sigh. These fluctuations have been happening the
whole time I’ve been here, so nobody is really surprised. The doctors say that as long as the LW
continues to look good on the monitor, then we stick with the same plan. Everything else is pretty much the same. Extra-abdominal bowel distension, full bladder,
stomach out. The doctors still say that
none of these things are red flags that would cause us to deliver the LW
early.
I should explain how they measure the AFI. Basically they visually inspect each quadrant
of the uterus (left top, left bottom, right top, right bottom) for pockets of
fluid, which look like dark spots on the ultrasound. They can’t use any pockets that have cord in
them. They measure the lengths of the
biggest suitable pockets they can find and the computer spits out the AFI. So it depends on what pockets the technician
can find that day, which can be influenced by the baby’s position and how much
she’s been moving around and stirring up the fluid. It can also be tough to find big pockets with
gastroschisis pregnancies because there is other stuff in there getting in the
way. So obviously there are a lot of
variables and it’s not an exact science, which could partially explain why my
AFI fluctuates so much.
Today also marks 4 weeks that I’ve been here in the
hospital. The good news is that if I
make it to 38 weeks, I’m more than half way there! But I won’t lie. As time goes on, this whole thing gets harder
and harder. I have good days and bad
days, and I’ve figured out that ultrasound days are almost always bad
days. It’s just so hard to see my tiny baby
on the screen with her organs all rearranged, and her bowels getting more and
more distended, and know that there’s nothing I can do. Even though I know I’m seeing things that everyone
expects to see at this point, it’s impossible to keep doubt and fear from
creeping into my mind. As the ultrasound
images pile up and D-Day gets closer, I get more and more nervous about what we’ll
encounter when she’s born. How damaged
will the intestines be? Will there be
additional complications and/or surgeries?
There is no way to answer these questions right now. All I can do is surrender to God and trust
the advice of our doctors.
I saw the hospital’s senior perinatologist today after my
ultrasound, and he told me that when the day comes for us to take the LW home,
and all she’ll have as a memento is a little scar on her belly, I’ll laugh when
I think of all the worrying I did. He
reminded me that these babies almost always do just fine. You just deal with things one day at a time
as they arise. My ob/gyn stopped by
after that and reminded me that the LW has already shown us how strong she is
during her monitoring. All the signs
show that she is going to be one tough cookie who will beat whatever is placed
in front of her. So many of my nurses
have said the same thing. So why do I still worry when the people who know what they're doing are so positive? I guess I'm just a mom, and I’m allowed to have bad days and cry it out when I need to. But when that’s over, it’s my job to make sure
this little girl knows without a doubt that her dad and I love her and believe
in her strength.
Dear Heidi and Erik,
ReplyDeleteOnce again, you said it all so well, Heidi. It's so hard for me to know MY kids are in pain and I can't do anything about it. It's not just that you are so far away, but that doesn't help. I too trust the doctors who are saying all this will work itself out. I too trust a loving God. There is nothing outside his care for us. Lean on Him and continue to have faith in our strong LW. With much love, G-Ma Mek
Of course LW has parents who love her, no doubt about this point ;)
ReplyDeleteAlso, everything that we don't know, don't understand or never experienced tend to scare us, that's a normal human reaction. It is totally normal to be nervous for LW and think about the worse situation (and you have a mother instinct on top of that, too).
But the worse situation never happens at the end of the day when we think about it. Trust in your doctors and nurses, they know, they understand, they've experienced this situation many times and they remain positive ... So, it's a good reassuring sign, right ? :)
I think of you everyday. xoxoxo