Welcome to my blog! First
off, thank you so much for taking the time to check us out and follow our
journey! I never really planned on
starting a pregnancy or baby blog, but as it turns out, we’ve created a unique
little snowflake whose story is already worth sharing. Our baby (whose name is being kept under wraps
until she’s born) has gastroschisis, a fairly rare birth defect that basically
means that there is a hole in her belly and her intestines are sticking outside
the hole. I’ve posted more background on
gastroschisis here. The good news is that it’s very treatable,
the survival rate is over 90%, and most gastro babies go on to live totally normal
lives without any serious complications.
The not-so-good news is that our baby will be in the NICU for the first
several weeks of her life. She may have
to undergo one or more surgeries if complications arise, and we won’t be able
to hold her for probably a week or two. Also,
gastroschisis pregnancies can get a little rocky in the third trimester, which
I have already begun to experience (more on this later).
The question that my husband and I get asked most often is
how we are coping with all of this. And
honestly, we’re doing okay! We’ve had
some time to adjust to the news and prepare for what’s ahead. I won’t lie – it can be easy to fall into a
vicious cycle of “Why me?” When that
happens, I try to remember that nobody gets through life
without experiencing hardships. This
just happens to be one of ours. And in
the grand scheme of things, it could be so much worse. We have some extra hurdles to get through
before we make it to the finish line, and they’ll be big, difficult hurdles, but
we’ll get there. And after this is all
over, we’ll have a happy, healthy Little Warrior to bring home whose strength and
courage will amaze and inspire us!
This blog will provide updates on my pregnancy and hospital
stay, the Littlest Warrior’s birth and progress while she’s in the NICU, and the
Littlest Warrior’s life at home. I also
hope to provide support and information to other parents with gastroschisis babies
or babies facing similar challenges. Please
feel free to leave comments and questions and I will try to answer them the
best I can. Enjoy!
The Littlest Warrior, Week 20. Blissful smile or devilish grin? Only time will tell... |
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